Showing posts with label diabetes. Show all posts
Showing posts with label diabetes. Show all posts

Thursday, December 14, 2017

Traveling in New Zealand and Australia for up to 6 months and wondering about getting insulin diabetes

Starting in mid-January my friend and I are traveling to New Zealand and Australia for several months on a working holiday. I have Type 1 Diabetes and use an insulin pump. As it is necessary to me living, I am wondering what the best way to get my insulin will be. Does anyone know what it takes to fill a prescription in New Zealand and Australia as a US citizen? Or does anyone have experience traveling longterm being insulin-dependent diabetes? Any advice anyone can give would be much appreciated!

I have traveled for three months in Tanzania before, but I stayed in the same place and was able to bring enough with me as I was insured a refrigerator. This time I will be moving around a lot and will be going to hostels and homestay without knowing for sure if I will have a fridge. For all my other supplies I will just bring enough for the whole time, I'm mostly just worried about the insulin.



Submitted December 15, 2017 at 08:38AM by dukedukelukeluke http://ift.tt/2B0PxfH diabetes

Tuesday, September 19, 2017

Any Phoenix area people need Novolin-R or Novolin-N? diabetes

Because I switched over to a Keto diet nine months ago, I haven't used insulin since the start of the year. However, that means I have three boxes of syringes, and five vials of Novolin-N and four vials of Novolin-R sitting in the refrigerator. The "cheap stuff" from Walmart.

If anyone would like them, contact me with a private message. No cost. I just would hate to see them go to waste. (...like the $10K I've spent on insulin over the years...)

I live in Peoria, near the Arrowhead mall.



Submitted September 20, 2017 at 12:30AM by rharmelink http://ift.tt/2fh144s diabetes

Thursday, August 3, 2017

Hotel refrigerators (The horror lurking in your room) diabetes

A little while ago I tested the hotel fridge with some water, and when it didn't freeze, I put my insulin in and it froze solid. It was a hassle, but I got it sorted out after a few high days. This was the first time it happened, and I wanted to know, has this happened to anyone else? How rare is it?



Submitted August 03, 2017 at 11:44PM by FireeFalcon http://ift.tt/2u8tKT9 diabetes

Saturday, June 17, 2017

Apparently I made a BIG mistake... diabetes

I have T2 diabetes and I've had my A1C under control pretty well. Last blood work months ago I was at 5.0 -- so pretty happy. Well this time (last week) my A1C was 8.2 -- OUCH. So I started to look at what has changed...

I take Lantus. I hate the pens. I always jiggle the pen while dosing, so I end up bruising myself. I was later told that Lantus comes in vials, too. So I switched to vials.

I was getting knots in my mid-section at the injection point. I did some reading and learned that two things can cause the knots: needle too long on the syringe, and insulin too cold when injecting.

I did further research and found an article by a noted endocrinologist who talked about length of needle. I was using long needles (12.5 mm) because the pharmacist told me: "Big guys like you and me, we need a longer needle to get to the fat layer". Well, this doc's article said that basically that's bullshit, and his argument makes sense. Skin is only so thick. Fat people don't have a bunch of thicker skin, they have a thicker fat layer. Well, I've lost 60 pounds and I'm using these long needles. Doctor's article says "normal skin, until you age, is no more than 3mm thick -- so nobody, in reality, needs more than 3.5mm to clear the skin layer and reach the fat layer".

The shortest they had at Walmart (gotta buy those syringes where they are the cheapest, $11.99 for 100 rather than $20 or more for 100 elsewhere) is 8mm. I switched to the 8mm and I'm not getting the knots.

But here's where I made the BIG mistake...

I was reading on the Sanofi web site (maker of Lantus) that Lantus should be refrigerated until opened for use. Then it can be stored at room temperature. Well, I started doing that a few months ago, and apparently it is NOT the best thing for me. My A1C and my daily testing numbers have gone up since I started storing my vials of Lantus outside the refrigerator once I opened them.

So I tossed my last vial (was almost empty anyhow) and got a new refill. Stored it in the fridge and kept it in the fridge and now my home testing of my blood sugar has dropped back down again.

Will be waiting to see how my next A1C test turns out.

Anyhow, just sharing with you guys in case anyone else may be doing wrong what I was doing wrong. Love and prayers to all of you guys who are suffering from this like me.



Submitted June 18, 2017 at 04:41AM by faxinator http://ift.tt/2rIM9Qy diabetes

Saturday, May 20, 2017

Tips for storing diabetes supplies when traveling? diabetes

Hello /r/diabetes! I'm writing this post as I'm planning a backpacking trip around Europe for a month and I need some advice. My main concern is the temperature differences my insulin has to withstand during the trip. In lieu of refrigerators I am thinking of going with a Frio cooling system and I'm trying to figure out the best way of storing it. My insulin is made to last in room temperature up to 30 days by itself, does it need cooling at all? Can I have all my insulin reservoirs in the Frio the entire time and re-soak it every two days? I'd like to pre-make my pump carts before the trip and fill them up with insulin (not cooled) beforehand to save bag-space and time. If this is an alternative, do I keep them cooled in the Frio or just in the backpack somewhere? I'm asking since they've already been exposed at room temperature after making and maybe they go bad if I cool them afterwards. I don't know how cold the Frio gets.

Thanks a lot!



Submitted May 20, 2017 at 07:06PM by jonasis http://ift.tt/2rDlc1a diabetes

Thursday, May 18, 2017

My Minimed 630G is malfunctioning. I don't need help, I'm just curious if anyone else has had this problem with the same pump diabetes

I recently got a 630G about 4 weeks ago. Last week it started acting up, it would stop working and give me a "rewind required" for no reason. To clear the error I would have to rewind, reset the reservoir, and prime the pump. This continued and often times happened 5+ times a day.

I called medtronic, they sent me a new pump but now it's happening again. Not nearly as frequently, but still unnecessarily.

Has anyone else had this problem with this pump model?

Edit: if anyone is reading this, I called medtronic again and they're going to send me a 3rd pump.

Apparently it was the right place at the right time kind of scenario because their supervisor's supervisor was walking by. He was very intrigued, they've never seen this happen before and are still working on failure messages so they're going to be following up with me. The error I'm getting is associated with magnets so let's hope this doesn't mean my pump will fail whenever I walk past a refrigerator magnet   ¯\_(ツ)_/¯



Submitted May 18, 2017 at 09:31PM by LoogaBeluga http://ift.tt/2q1kGsy diabetes

Friday, March 31, 2017

Are nutritionists giving bad advice? diabetes

So I am an obsessive type and I have spent many years obsessing about eating, losing weight, being healthy - all of these things have never worked of course and have led to what is likely some form of eating disorder, but still, it set me on this path to figuring out food.

Tiny bit about me: I am 33 years old. I was very active growing up and as a teenager, healthy weight but chesty and thought I was "fat" at 120-125 pounds (shut up younger me, you idiot), and totally ate whatever I wanted through high school. One thing to note was that I rarely ate breakfast or lunch and would eat after school hours only, for a variety of reasons I won't get into here. At about 19 years old, after being in college for a year (stressful year), I probably weighed about 130 pounds. By the time I was 20, I weighed 200. I blamed stress, school, severe insomnia, something of a caffeine addiction (damn you, cherry coke), and that I was less active because I was so busy (and I went to school where there was always snow and ice, so I walked to class, but I did not go out for regular walks in between just for fun). Yes, all those things realistically could turn into such an extreme gain and I was told by my doctors that it was simply all those things, genetics, and that I was "getting older" (I still don't get wtf that could mean from 19 to 20 years old).

After nearly a decade of probably having Hashimoto's and it going untreated, I'm finally receiving appropriate treatment for it while I'm bouncing between 260-270 pounds (oh, and I'm a hair's breath away from 5'1"), the heaviest I've ever been. I have followed many life-altering diets, including weight watchers where I did lose 30 pounds, then bounced back up and more while still doing all the same things for weight watchers and aside from those special 30 pounds, I've never done anything but gain or remain the same. I was also told years ago that I had diabetes when doctors after that said "but all of these numbers are indicators that this is not diabetes" and have been pretty mentally messed up over this since (understandably). In the approximate decade since all that weight gain and my graduation from college and attempts to eat more like a normal person should, I've seen a variety of nutritionists who seem to all give similar advice that is the opposite of what my own research says.

I was actually pretty proud of myself after having more than one meal over the past few weeks since I attended a diabetes education group course March 7, 8, and 9. My A1C officially hit 6.5 in January and my primary care doctor told the paper "you are diagnosed," so I initiated finding more help, which was those classes. I saw the nutritionist one on one yesterday. Aside from how I couldn't convince my doctor to test for Latent Autoimmune Diabetes in Adults (which I have some red flags for and my GI says he's pretty sure I have an autoimmune B12 thing that he's waiting to test again about) and felt annoyed that I once again had to hear how I've obviously been doing so many bad things that I caused diabetes, I was at least grateful that the nutritionist didn't harp on weight too much.

She did, however, insist that if I simply follow the Plate method, I will lose weight. And my A1C will go down. Well... okay I can try this I guess along with learning to eat more than once, sure. But then she scolded me (like kind of a lot) for having any saturated fat on the plate. "Oh bacon should be once a month at most!" "Don't use butter to saute vegatables, use PAM spray!" (ew, no)

I was super proud that I had managed to eat more than once in a day, and was learning to listen to my body's signals (I frequently have no idea when I'm hungry, sometimes eat a tiny bit of food and feel full, and then sometimes have days where I realize it's 8 p.m. and I'm not just hungry, I'm ready to eat the refrigerator door.), and that the bacon in particular seemed to make me feel full for longer, seemed to significantly lower my blood sugar readings (which she said I was wrong about and that I should test more to clarify - while avoiding the bacon), and gave me some energy, something that my other problems frequently cause me to have none of. She again insisted that using butter at all was terrible and that diabetics can't have saturated fat. I asked why things like the Paleo diet worked and she said it wouldn't work for me because diabetes increases risk for heart disease. I tried to say but isn't it that animal fat, the saturated fat she's so afraid of, actually helps clear those clogs that are from carbohydrates, especially added sugars? It's like I was speaking in tongues.

Here's just a little of my research with links, and I won't list every obscure article ever:

Article from Time that discusses a book that urges saturated fats be included in a diet rather than eliminated or severely restricted This Harvard Health article takes blame away but isn't comfortable saying eat saturated fat to your heart's content, but still points to the real problems The Naughty Nutritionist - an article for Psychology Today about bacon and saturated fat Article about Saturated Fat I have read the Nourishing Traditions book, here's a link to their website This book I've read summaries about, but haven't gotten my hands on yet - Same authors and similar to previous book Book Documenting a Family's Year With No Sugar Fat Head Documentary

I am going to spend a month, between now and April 27 when my next appointment with the nutritionist is, doing this plate thing as best I can, and she insists that it will be so healthy and I will just lose weight without counting anything (an important thing for someone who has some OCD running through her veins that has been a black hole of lunacy previously in creating counting logs). A friend of mine who has no metabolic conditions but has generally hovered at 60+ pounds to lose up and down through her life started a "crazy" diet from her acupuncturist who wants her to slather everything in butter, avoid carbs that aren't in vegetables (I think she can have fruit, too) and eat as much meat and cheese as she pleases, the more the better, fatty, lean, organs, everything. In about the same amount of time that I have been doing this "eat more often and use this plate thing" she has been aiming per acupuncturist's recommendations to use half a pound of butter a week and in literally only days longer than I have been doing this (I think she started 5 days before me), she has lost 13 pounds. The scale at the nutritionist's said I lost 4, which I think is simply water weight and bloat (I have IBS and I know that I was very bloated the evening they first weighed me, because the next day I went to a doctor's appointment and they said the same number on the scale yesterday.).

Today's experiment example: I woke up today and was 134 at 11:49. I waited about thirty more minutes, maybe a bit more, to eat because I had just gotten up and my levothyroxine requires no eating for an hour after taking in the morning. I ate slowly and had two left over chicken wings (the whole wing), some leftover sauteed in olive oil (and only a little bit!) zucchini, green cabbage, and onions, and a small orange (which I ate last). It took me til about 1ish to eat that and a few minutes ago I checked again and I'm at 157 (it is now 3 p.m.). My bacon breakfasts were frequently like these numbers, in reverse. I simply snacked on bacon once and it lowered my number by about 60 points. Yes, this is anecdotal evidence, but it's kind of compelling enough to want to investigate further.

Sooooo... which experiment is smarter? Are nutritionists giving bad advice? What's the "right" science behind what we're eating? What has everyone been most successful with? Are my ideas about just eating the damn bacon and using butter instead of chemical sprays crazy? Will eating saturated fats be less "effective" in what I would be hoping they do because of my diabetes?

TL;DR : Nutritionists have been telling me to fear saturated fats and use the "plate" method, some anecdotal evidence suggests otherwise, so I did more research and linked some of it above. Are nutritionists giving bad advice?



Submitted April 01, 2017 at 12:38AM by Evenoh http://ift.tt/2nTwXBL diabetes

Wednesday, January 11, 2017

questions about insulin, FRIO, and travel. diabetes

I've asked about traveling and insulin in an earlier post and in other forums. A lot of people have mentioned FRIO as a solution. I'm currently packing to return home from an 2 week trip. Before I left, I hydrated a FRIO bag and haven't touched it in 15 days. When I was packing up tonight, I found that it was still pretty cool.

As I've mentioned earlier, from what I can find, the manufacture says that unused Toujeo needs to be refrigerated, and that once a pen is at room temperature for more than 4 hours, it has to be used within 45 days.

The FRIO sleeves seem to keep insulin cooler than room temperature, but warmer than a refrigerator. I'm going to assume that traveling in the FRIO sleeves, the insulin will last longer than 4 hours. On my next trip, I'm going to be traveling for almost 12 hours and on-the-road for over two months. I'm wondering how you tell if insulin has "gone bad"? I've read that you should throw it out if it gets cloudy. If it remains clear, does that mean that it is still good?



Submitted January 11, 2017 at 01:29PM by RschDev http://ift.tt/2junGLf diabetes

questions about insulin, FRIO, and travel. diabetes

I've asked about traveling and insulin in an earlier post and in other forums. A lot of people have mentioned FRIO as a solution. I'm currently packing to return home from an 2 week trip. Before I left, I hydrated a FRIO bag and haven't touched it in 15 days. When I was packing up tonight, I found that it was still pretty cool.

As I've mentioned earlier, from what I can find, the manufacture says that unused Toujeo needs to be refrigerated, and that once a pen is at room temperature for more than 4 hours, it has to be used within 45 days.

The FRIO sleeves seem to keep insulin cooler than room temperature, but warmer than a refrigerator. I'm going to assume that traveling in the FRIO sleeves, the insulin will last longer than 4 hours. On my next trip, I'm going to be traveling for almost 12 hours and on-the-road for over two months. I'm wondering how you tell if insulin has "gone bad"? I've read that you should throw it out if it gets cloudy. If it remains clear, does that mean that it is still good?



Submitted January 11, 2017 at 01:29PM by RschDev http://ift.tt/2junGLf diabetes

Sunday, August 28, 2016

Best mini-refrigerator for the apocalypse diabetes

I keep 6 months to 1 year's worth of insulin on-hand, and would like to purchase a small refrigerator for use in a catastrophic situation, like the flooding going on in Louisiana.

Although insulin has a long shelf life even at room temperature, a few weeks without power in the 90-100 degree weather in the South could definitely reduce it's lifespan.

I would like something small, that can run off of a car battery, an integrated solar panel, or better, both.

If anyone has any experience with quality portable refrigerators, please let me know. I'd hate to drop a couple hundred dollars on one only to have it flake out when I needed it.



Submitted August 28, 2016 at 10:38PM by JudgeMontrose http://ift.tt/2btQors diabetes

Friday, July 29, 2016

Test strip temperature & storage. diabetes

Is it OK to store unopened test strips in a refrigerator? I know that if moisture condenses on them they will be ruined, but what about long term storage at about 8 degrees C.? The idea being that if they are taken out, the container is allowed to come to room temperature for about 5 hours before it is opened for the first time?



Submitted July 30, 2016 at 01:07AM by Albacorewing http://ift.tt/2afPuzM diabetes

Saturday, June 11, 2016

Keeping Insulin Cold While Travelling? diabetes

Hey all,

I am a T1D who will be likely travelling from Canada to Australia for about a year. The flight/travel time seems like it will exceed 24 hours when taking into account lay overs and what not.

I see powered coolers like this one: http://ift.tt/1OiIMdS

I was wondering if anyone has experience with them or knows or a better solution for long term travelling. I will be bringing about 6 months worth of insulin so a smaller pouch wouldn't really work in this situation.

Any help is appreciated!



Submitted June 12, 2016 at 03:26AM by ontario-guy http://ift.tt/1ZHepOT diabetes

Friday, March 25, 2016

Another travel question diabetes

Another in my endless series of travel questions...

I had a very thorough pat down from the TSA today. Don't know why that bugs me so much...

Here is the question: I'm very insulin sensitive and still in my honeymoon. I rally hate throwing out insulin so I use a pen for 5 or 6 weeks. I will be gone all next week and will need to change out my basal and bolus pens. I can still get a few more days out of the current pens. If I put the pens in a frio and put the, in the refrigerator when I get to my destination 8 hours later, when does the clock start on their spoilage? Is it tomorrow when I put them in the frio or when I put the first needle in them mid-week? I know this may seem a little obsessive but I am trying to take good care of myself and not be wasteful. Does anyone know the answer to this?



Submitted March 26, 2016 at 06:54AM by Sweetpee999 http://ift.tt/1URJpez diabetes

Thursday, August 27, 2015

Shivering / Shakiness? diabetes

TL:DR -- Don't know what's causing me to shiver uncontrollably for half-hour episodes. How to know what it's related to -- LCHF diet, thyroid, insulin?

Hey, all. Was diagnosed as Type 1 in June -- A1c of 13.4. Changed my diet to low-carb. Started Lantus pen 5-8 units depending on the week. Mostly been under control between 85 and 135 on meter. There's been a lot of weird sensations in the past couple of months, for sure. This week has been harder to control -- highs in the 130s and 140s and had to up basal insulin to 10 units. (I don't have any bolus yet.) Weight is down to the 170s from 200 lbs.

I have had repeated episodes of uncontrollable shivering for, like, half an hour to 45 minutes long. It usually occurs overnight. Sometimes I start feeling really cold, and sometimes my hands and feet are genuinely cold to the touch. Hopping in a hot shower for 20 minutes does seem to make it go away sometimes. I turn off the A/C during the day because it gets too cold in here for me, but my partner comes home and turns it back on and adds a fan, too. Thermostat says 73 or 74, but it's like a refrigerator to me. We fuss about it all the time.

Last night I wasn't feeling particularly cold, though. I took a nap on the couch and woke up shivering and shaking like crazy. I had a light cover on me and a warm dog curled up next to me, too. I had injected 4 units of Lantus a few hours earlier, but hit a vein or something and it hurt more than usual. Some of the insulin leaked back out. Happens sometimes. My blood sugar was 98 when the shaking occurred, temperature 97.4 deg f. I tried a hot shower, but it didn't work. Drank some iced tea, and the shaking settled down after a few minutes. The sugary drink and the stopping could have been coincidental, or maybe not. I don't really know.

Also, almost 24-hours a day I feel a low, shaky jitteriness that doesn't seem to be getting better. I fall asleep and wake up feeling like a human-sized tuning fork almost every day.

I don't know if any of this is diabetic-related or not. Maybe its the low-carb, high-fat diet? Or a thyroid problem? Or a vitamin problem? Or a reaction to the insulin? Or "low blood sugar" even though its not technically considered low.

Just wondering if anyone has any insight.

I'd love to feel normal again, and don't know which doctor to talk to or even how to describe this and be taken seriously. They've not been particularly responsive to my complaints over recent years -- offering me anti-depressants instead of -- oh, checking maybe to see if I had diabetes for the past who knows how long.



Submitted August 27, 2015 at 05:39PM by 4thshift http://ift.tt/1hheeJq diabetes

Tuesday, August 4, 2015

Purchasing insulin in Southeast Asia diabetes

I am type 1 and will be traveling Southeast Asia for 3 months and using a pump. I have frio bags, plenty of extra supplies (strips, reservoirs, infusion sites), a loaner pump, extra meter, and everything I should need. But, being there for three months and unsure whether I will have access to a refrigerator with any regularity, I will need to purchase insulin twice while I am there.

I am having trouble finding much info on buying insulin in Taiwan, Hong Kong, and the Philippines (the three places I would potentially be buying from). I currently use Novolog, but could obviously switch to Humalog if it were available.

tl;dr Does anyone know if it's possible (and if so, how easy/expensive) to get Novolog or Humalog vials in Taiwan, Philippines, or Hong Kong?



Submitted August 05, 2015 at 03:27AM by marshalj http://ift.tt/1IFuaLG diabetes

Tuesday, March 31, 2015

Does anyone need Humalog pens? diabetes


I have two boxes of unused Humalog pens. The boxes have never been opened, and have been properly stored in a refrigerator ever since they were purchased. I'm switching to pen cartridges and don't really need these. I live in Nashville, but would be willing to ship if you really need them.







Submitted April 01, 2015 at 02:01AM by msannethrope http://ift.tt/1ag2oMY diabetes

Friday, January 23, 2015

[RANT] E-mail I sent to completely uninformed focus group agency looking for "diabetic" patients diabetes


So I subscribe to the e-mail blasts from this company called Advanced Opinions in NYC, which works with various companies to create focus groups to test different products. Basically, they pay you to come in and serve on a panel and you give your opinion while the reps from the company watch you from behind a two-way mirror. It's all very Madmen-esque. I signed up as a way to make some easy extra money on the side, and periodically I'll fit exactly what they're looking for (although it's harder than you'd think; most of the time they want really niche demographics like African American women with green eyes who have their PhD and wear contact lenses. Or something like that. Anywho.)


So recently, I received an e-mail from the above named company in my inbox and checked to see if I fit the (probably ridiculously narrow) criteria. Here's what the e-mail said:



Diabetics: (You must bring your insulin bag with you)


Wed/Feb4 or Thurs/Feb5 - 1-hr 15-min $125 Visa Gift Card many times available 7:45am thru 7:45pm NYC(40&Lex) fill out the form to be considered.



AND THAT WAS IT.


So I'm staring at it, and staring at it, getting angrier by the second, not really understanding how they managed to trigger such profuse anger within me using so few words. After I calmed down a bit, I wrote the following (much wordier) e-mail in response:



To Whom it May Concern,


As someone who has diabetes, I just want to point out that the term "diabetic" used to refer to a person who has diabetes is actually considered highly offensive by many within the type 1 community. The more PC term is "person/people with diabetes." You wouldn't define a person with cancer by their disease by calling them a "canceretic"; it's the same with those affected by diabetes.


Secondly, what do you mean by an "insulin bag"? I haven't the slightest clue what this could possibly mean besides the bag in which we keep our insulin, which is inapplicable for those on pens or an insulin pump (eliminating a demographic of possible focus group applicants right off the bat.) For those who do carry their insulin with them, the container in which it's kept is completely dependent on personal preference. (I keep mine in a refrigerator at home where it's supposed to be when not in use.) Whatever this "insulin bag" is, it's not a technical or even colloquial term that people with diabetes use. I tried giving you the benefit of the doubt (even though I've had type 1 diabetes for 23-years) by asking the other woman with diabetes in my office if she had any idea what an "insulin bag" was, yet she was equally as baffled.


The reason I'm taking the time to bring this to your attention is because I assume you're representing a company that has a vested interest in the type 1 community (a pump company or something similar) and I also assume that your client's last intention would be to alienate or offend their potential customers; potential customers meaning me, my coworker, and anyone else with some form of diabetes. And I'm reasonably offended by your e-mail. I'm offended, despite knowing that a majority of those not affected by type 1 diabetes have a limited understanding of the disease. However, as a company that works with other companies trying to target those affected by various medical ailments, I believe you have a greater responsibility to your constituents and clients to be better informed.


In the future, I hope that the team at Advanced Opinions makes a more concerted effort at being sensitive to those affected by chronic illnesses before sending any subsequent e-mail blasts that contain inaccurate or offensive terminology.



Owned it?







Submitted January 24, 2015 at 02:57AM by typewonderful http://ift.tt/1y9OJur diabetes